Saturday, August 7, 2010
My favorite Sister
She's my only sister of course but after all this time I can't imagine having a better sister. She is hysterical and generous and lovely. She makes me laugh even when I want to cry.
Sunday, July 25, 2010
Unemployment, Moving and possibilities...
I'm still in the midst of a lot of major changes. I went through an overdose of anti-anxiety pills which led to taking those completely out of the equation and learning about addiction. Because I was unable to work, I am now unemployed but receiving benefits. I came back from Gatecon with a newly inspired joy that I'd somehow lost. I've lived many different places in my life and over time, I've lost that dreamy quality and replaced it with the words of my family who, through the best of intentions, have always thought I was a bit strange for having such aspirations.
I'm not unhappy but I'm also missing something. I haven't moved in over a year and I've been in Wisconsin since 1999. I want to change that but I want to be sane about it. Leaving my family isn't something I'd do lightly. Though I am proud of where we've ended up. My sister would probably not be as deeply ingrained in our lives as she is if I hadn't impulsively pulled her out of a home to live with me 6 years ago.
The future is uncertain. I'm probably going to a convention in Atlanta in September almost entirely because people I've met elsewhere have been incredibly supportive. I'm literally at the bottom of the financial ladder but that's ok. It gives me time to plan, time to write, time to dream and then I can take flight.
No matter where I go, Angie and John will be in my heart.
I'm not unhappy but I'm also missing something. I haven't moved in over a year and I've been in Wisconsin since 1999. I want to change that but I want to be sane about it. Leaving my family isn't something I'd do lightly. Though I am proud of where we've ended up. My sister would probably not be as deeply ingrained in our lives as she is if I hadn't impulsively pulled her out of a home to live with me 6 years ago.
The future is uncertain. I'm probably going to a convention in Atlanta in September almost entirely because people I've met elsewhere have been incredibly supportive. I'm literally at the bottom of the financial ladder but that's ok. It gives me time to plan, time to write, time to dream and then I can take flight.
No matter where I go, Angie and John will be in my heart.
Tuesday, July 13, 2010
July and Gatecon
In the months since my last post:
John went into the hospital again (for the 6th time) and his blunt but kind doctor explained the process of morphine given to someone dying to me. It was painful to hear but doesn't change our decision. I will not have him suffer, I will not let him be tied down to keep him alive nor let them feed him through a tube. It sounds small but to John, eating is a Joy, one of the truly few he has control over and I will not take that from him. But, he got sick quickly and recovered quickly so all is well.
Angie is completely acting out more (yay yay yay) and her caretakers at school are being a little too helpless about it. She's growing and pushing her boundaries. She's developmentally delayed - she won't stop - you have to keep adapting and the fact that she's pushing those boundaries means she's Living! When I say acting out, I mean that she's not standing there and letting people be really loud in her face or touch her if she's not comfortable - she does what she right now knows how to do - pushes them away or 'smacks' their arm or leg (not hit but open hand with light force.) yes, she has to find another way to do it but she's non-verbal so it is a challenge.
Mom is out of work until August for her knee surgery and her workplace is treating her with such disrespect that it makes me ill. But she has ideas and there is light on the horizon.
I'm out until Monday with my own short term leave. I just got back from an amazing convention. Last month I also stopped drinking and went off some medication so lots of medical/psychological adaptations for me which is why i was off work. This month has had me completely inside my head thinking about my life and where to go with it. To have met the people I met this last weekend - both actors and convention goers - at this time in my life is priceless, timeless, special, spiritual and amazing all in one.
I also have a small shout out to this site: http://ibelieveshesamazing.com/ - I just became aware of it and I'm completely on board.
John went into the hospital again (for the 6th time) and his blunt but kind doctor explained the process of morphine given to someone dying to me. It was painful to hear but doesn't change our decision. I will not have him suffer, I will not let him be tied down to keep him alive nor let them feed him through a tube. It sounds small but to John, eating is a Joy, one of the truly few he has control over and I will not take that from him. But, he got sick quickly and recovered quickly so all is well.
Angie is completely acting out more (yay yay yay) and her caretakers at school are being a little too helpless about it. She's growing and pushing her boundaries. She's developmentally delayed - she won't stop - you have to keep adapting and the fact that she's pushing those boundaries means she's Living! When I say acting out, I mean that she's not standing there and letting people be really loud in her face or touch her if she's not comfortable - she does what she right now knows how to do - pushes them away or 'smacks' their arm or leg (not hit but open hand with light force.) yes, she has to find another way to do it but she's non-verbal so it is a challenge.
Mom is out of work until August for her knee surgery and her workplace is treating her with such disrespect that it makes me ill. But she has ideas and there is light on the horizon.
I'm out until Monday with my own short term leave. I just got back from an amazing convention. Last month I also stopped drinking and went off some medication so lots of medical/psychological adaptations for me which is why i was off work. This month has had me completely inside my head thinking about my life and where to go with it. To have met the people I met this last weekend - both actors and convention goers - at this time in my life is priceless, timeless, special, spiritual and amazing all in one.
I also have a small shout out to this site: http://ibelieveshesamazing.com/ - I just became aware of it and I'm completely on board.
Monday, April 12, 2010
Scriptfrenzy
I like to write. I have a talent for it but like any talent, it takes practice. I'd like to get serious about it now. One way I've been doing that is by entering contests, paid and unpaid. One of them is a screenwriting challenge (i've never written a screen play) for 100 pages in a month. I'm 3 pages away from 50 and I have no idea where the other fifty are going to come from. I thought about starting a second short play but really, the big story I have to tell is my own. I find talking about it in the third person helps give me perspective as to what is interesting to look at not just read.
I also bought a book called writer's market. It comes with an online addition that lets me search for types of articles to write and magazines to submit them to. First of all, I need a collection of work. Books, articles, Essays - non fiction opinion, research etc.
My blogs have helped keep my writing skill honed but its time to ante up.
Aside from my own little world, John has been sick again with pneumonia. I'm nervous and scared like any sister. Its made worse by his inability to really tell us 'i'm feeling congested or really tired' - the only sign is sleeping late and being unable to move without help. They caught it early and he was only in ICU 4 days before going home. They sent him home with O2 but we can only put it on him at night. He did come home for Easter. He was his annoying little self so you know he's feeling better.
I think he gets away with more because he's ill and ill a lot and he knows he's treated differently. He's on a lot of meds to handle his behaviors and at the home he lives at, there's a nice time out room - a sunroom with his cd player for him to chill out without being overstimulated.
The hard part of this bout with pneumonia was the doctor saying his lungs are severely damaged. there will be a time when we don't catch it and he'll not wake up. Not saying it'll happen tomorrow or this year or in five years just..it is likely to happen. Facing mortality - always hard.
Mom and I and John and Angie will be buried together or all of us cremated at the same plot. Time will tell.
I do want to write my book about Angie and John. Maybe a short story for a website would be a good start. I think there's a serious need for research on alternatives for adults with disabilities in the different regions. A comparison if there isn't one already. But that's a huge project. I wonder if I could at least get a handout from each state. Maybe one of the Down Syndrome websites has or an interest in it.
I also bought a book called writer's market. It comes with an online addition that lets me search for types of articles to write and magazines to submit them to. First of all, I need a collection of work. Books, articles, Essays - non fiction opinion, research etc.
My blogs have helped keep my writing skill honed but its time to ante up.
Aside from my own little world, John has been sick again with pneumonia. I'm nervous and scared like any sister. Its made worse by his inability to really tell us 'i'm feeling congested or really tired' - the only sign is sleeping late and being unable to move without help. They caught it early and he was only in ICU 4 days before going home. They sent him home with O2 but we can only put it on him at night. He did come home for Easter. He was his annoying little self so you know he's feeling better.
I think he gets away with more because he's ill and ill a lot and he knows he's treated differently. He's on a lot of meds to handle his behaviors and at the home he lives at, there's a nice time out room - a sunroom with his cd player for him to chill out without being overstimulated.
The hard part of this bout with pneumonia was the doctor saying his lungs are severely damaged. there will be a time when we don't catch it and he'll not wake up. Not saying it'll happen tomorrow or this year or in five years just..it is likely to happen. Facing mortality - always hard.
Mom and I and John and Angie will be buried together or all of us cremated at the same plot. Time will tell.
I do want to write my book about Angie and John. Maybe a short story for a website would be a good start. I think there's a serious need for research on alternatives for adults with disabilities in the different regions. A comparison if there isn't one already. But that's a huge project. I wonder if I could at least get a handout from each state. Maybe one of the Down Syndrome websites has or an interest in it.
Friday, February 19, 2010
Shorty
Please watch this movie: http://bit.ly/9NHMwp
Its about a man who is 56 and lives with his brother. His father was involved in the local school athletics program and Shorty (Walter) became part of the routine. Water boy, towel man, coach etc.. The documentary follows him around. Some times he sounds like a normal mundane man but his attitude and his loyalty are inspiring. You can see in the people that talk about him - strong strapping young lads playing football, old coaches, his brother, his nieces and nephews - how much he adds to their lives in ways they just never thought about.
Its available on Amazon. The significance of his age is that the average down syndrome adult dies in their mid 50's (ie 55) so being 56 is statistically significant.
Its about a man who is 56 and lives with his brother. His father was involved in the local school athletics program and Shorty (Walter) became part of the routine. Water boy, towel man, coach etc.. The documentary follows him around. Some times he sounds like a normal mundane man but his attitude and his loyalty are inspiring. You can see in the people that talk about him - strong strapping young lads playing football, old coaches, his brother, his nieces and nephews - how much he adds to their lives in ways they just never thought about.
Its available on Amazon. The significance of his age is that the average down syndrome adult dies in their mid 50's (ie 55) so being 56 is statistically significant.
Wednesday, February 17, 2010
Rambling..
I tend to ramble and I hate editing. Makes it kind of hard to imagine me ever finishing any of my books. I did my autobiography in I think 1394 words a few months ago and I need to go back and edit it. Trying to be concise when my life is anything but is like stufffing Hulk Hogan into Twiggy.
This story of Angie and John is something I'm passionate about. There are blogs and books about little kids with autism and Down Syndrome. They are cute and cuddly. But adults - not so much. They are still so beautiful though. Like when you walk out of work on a freezing December night and the sky is that perfect midnight blue. They catch you by surprise.
One minute you're convinced your brother is devilspawn and the next his giggle dazzles you and you have tears welling up from deep inside because you didn't know he was still there.
It is absolutely crazy hard some days. But others, its effortless. My sister opens the door for the dogs so I don't have to get up and she claps with joy because I asked her to do something and she succeeded. She hugs me tight before she literally prances to bed and my mom and I sit in the living room, tears of laughter covering our face because she keeps turning the light on in her bedroom and the bathroom, going back and forth, drinking water from the faucet and murmuring to herself in her own language.
How do I take these conflicted, complicated human beings and bring them to life so people who have never touched or seen or been with someone with a disability can FEEL the beauty and joy that emanates from them and surrounds you?
This story of Angie and John is something I'm passionate about. There are blogs and books about little kids with autism and Down Syndrome. They are cute and cuddly. But adults - not so much. They are still so beautiful though. Like when you walk out of work on a freezing December night and the sky is that perfect midnight blue. They catch you by surprise.
One minute you're convinced your brother is devilspawn and the next his giggle dazzles you and you have tears welling up from deep inside because you didn't know he was still there.
It is absolutely crazy hard some days. But others, its effortless. My sister opens the door for the dogs so I don't have to get up and she claps with joy because I asked her to do something and she succeeded. She hugs me tight before she literally prances to bed and my mom and I sit in the living room, tears of laughter covering our face because she keeps turning the light on in her bedroom and the bathroom, going back and forth, drinking water from the faucet and murmuring to herself in her own language.
How do I take these conflicted, complicated human beings and bring them to life so people who have never touched or seen or been with someone with a disability can FEEL the beauty and joy that emanates from them and surrounds you?
Tuesday, February 9, 2010
Introduction #2
I'll caveat this by saying that I don't have regrets. I would not have wanted anything or anyone to be other than they were because I believe we have all come through our challenges as better, stronger, more loving and generous people.
This is not to say that I have never wished for a moment that my situation was different. To be forever responsible for your siblings - to have that responsibility drive your life choices is hard. It does give me purpose and the sense of being needed. There's no worry that my sister will move across country without me. There is worry that should I decide to ever go anywhere else, that I couldn't take her with me. That would be like losing a limb to me. I'm not fond of the town I live in. I much prefer Milwaukee, Madison or even Chicago. But this is where Angie, John and my mom are so this is where I am.
My sister in her worst moments smacks the dog, shouts in frustration and throws away papers we really wish she wouldn't throw away. My brother in his worst moments shits the bed, pinches so hard you get bruises and will nag you like a 3 year old for constant attention even if it means throwing the computer in your lap to the floor.
This is not fluffy bunny fun. I don't have any other siblings. I have cousins I am close to who have kids. But I won't have nieces or nephews, brother in laws or sister in laws. There's no one but me to take care of my mom and my siblings in their old age.
I deal with snotty caseworkers, brilliant doctors, stupid doctors and caring caseworkers. I know my siblings better than most but I always have to convince their new caretakers that I do before they listen. I'm a co-parent with my mom for my siblings and have been as long as I can remember.
To give me a chance at a different life, my mom placed Angie and John in a boarding school knowing she couldn't give them the best care when I was away. John has never been the same. Angie was different for a long time and she has come around after living at home and is a combination of our 'old Angie' and a grown up Angie. John seems more damaged and fragile. I carry that guilt - even knowing it was the right choice.
Being a parent or a sibling isn't easy for anyone. Each experience is unique. I cherish mine but the realist in me has to remember that sugar coating it makes the triumphs a little less sweet.
This is not to say that I have never wished for a moment that my situation was different. To be forever responsible for your siblings - to have that responsibility drive your life choices is hard. It does give me purpose and the sense of being needed. There's no worry that my sister will move across country without me. There is worry that should I decide to ever go anywhere else, that I couldn't take her with me. That would be like losing a limb to me. I'm not fond of the town I live in. I much prefer Milwaukee, Madison or even Chicago. But this is where Angie, John and my mom are so this is where I am.
My sister in her worst moments smacks the dog, shouts in frustration and throws away papers we really wish she wouldn't throw away. My brother in his worst moments shits the bed, pinches so hard you get bruises and will nag you like a 3 year old for constant attention even if it means throwing the computer in your lap to the floor.
This is not fluffy bunny fun. I don't have any other siblings. I have cousins I am close to who have kids. But I won't have nieces or nephews, brother in laws or sister in laws. There's no one but me to take care of my mom and my siblings in their old age.
I deal with snotty caseworkers, brilliant doctors, stupid doctors and caring caseworkers. I know my siblings better than most but I always have to convince their new caretakers that I do before they listen. I'm a co-parent with my mom for my siblings and have been as long as I can remember.
To give me a chance at a different life, my mom placed Angie and John in a boarding school knowing she couldn't give them the best care when I was away. John has never been the same. Angie was different for a long time and she has come around after living at home and is a combination of our 'old Angie' and a grown up Angie. John seems more damaged and fragile. I carry that guilt - even knowing it was the right choice.
Being a parent or a sibling isn't easy for anyone. Each experience is unique. I cherish mine but the realist in me has to remember that sugar coating it makes the triumphs a little less sweet.
Friday, January 29, 2010
Its January 2010
I am way behind in updating this lovely blog. I am completely flabbergasted that its been a month since Christmas. Work has been incredibly busy and stressful for me. So from the top...
...me: I'm really good. I tried a few Tae Kwan Do classes and settled on one that meets Tuesday/Wednesday/Thursday nights. I play Volleyball on Wednesdays but I can go on T/Th. I'm the lowest belt/newest person but I really like how TKD feels. I watch the others and the control they have over their body, the breathing, the flexibility and the whole attitude is amazing. Great, great energy. So I'm going to not worry about how bad I am or how long it takes me to learn something. I'm just going to keep going. The people there are really nice too and maybe I'll stumble onto a bit of a social life. Who knows? Work is kind of the same way - good people, but I'm much busier there so not sure on the social life implications.
...Angie: She's been having a bit of a rough time because I've been busy. We're very close and always have been. When I'm busy and drained, I tend to get a little grumpier at home and less focused on her. The big challenge is that Angie doesn't talk so she can't come up to me and say "listen, I know you're busy but PAY ATTENTION TO ME!" Instead, if I walk by her and she's upset with me, she'll smack my leg. This month that I've been working, getting home late, playing volleyball late or at TKD class, I just haven't been here for her. I do make a point of greeting her - a touch on the shoulder, a hug, making eye contact but its a change she has to adjust to. They have noticed a change in her at the Day Program as well. They suggested medication right away which really annoys me. She's been in this Day Program off/on for years. But with turnover, I know her caretakers/group leaders always change. They contacted my mom and I gave my suggestions to mom but she wanted me to talk to them myself since I express myself a little more eloquently. The Day Program contact refused to talk to me about Angie unless my mom was with me because I wasn't her guardian.
Excuse my language but What The Fuck? I pick my sister up, I drop her off, everyone knows who I am and when you see us together its VERY clear how important I am to Angie. Not to mention, my mom talks about my relationship with Angie all the time and her caseworkers and county nurse talk to me as well. This 'fresh out of school' brat needs to grow up and be professional. If she's really 'worried' then she just needs mom to sign a release. But I don't think that is it. Back in September when John was in the hospital again, Angie missed her bus and I had to pick her up. It was a stressful time for all of us and them making that kind of mistake was ill-timed. It wouldn't have been that big a deal for me except I was a) at the hospital with John and he can't really be left alone and b) a week before, the day program threw a hissy fit and called Angie's caseworker because my mom wouldn't leave work to pick Angie up at 1pm in the afternoon because they thought she had contagious ringworm on her head. For clarification, she gets on the bus to go home at 2:30pm. Their response to my mom was incredibly rude, insensitive and implied she was somehow a bad parent. So lets just say, a very agitated Hollie walked into the two people's office who called the caseworker and asked if she should call the caseworker on them? I definitely was not calm but they are supposed to be professionals and be able to deal with it. However, I'm pretty sure that's why they don't want to 'meet with me without my mom' because last time I yelled at them. Again, I say, suck it up and do what's best for Angie.
Anyway, since the latest communication happened by email, I replied to my mom and this woman who has a really odd last name with the clarification that if I can take my sister to the doctor and have her treated, then I'm pretty sure there's room in the law for me to tell her how to deal with Angie's hitting. (I said it nicer and I forwarded my reply to Angie's caseworker.) Like I said above, you need to be aware of Angie because she doesn't know how to politely ask for attention. If she's agitated by something (someone making loud noises or in her face) she's going to act out. While this is uncomfortable and inconvenient, its also a sign that she knows she has a right to protect herself and express herself. Redirecting is hard to do but it can be done verbally. The best action is to be proactive. Greet her in a way that she knows you notice her. Don't just say "hi angie", touch her lightly on the shoulder or wave to her and make good eye contact so she knows you see her. If she is acting agitated, give her either extra attention or give her time alone. If she hits, give her a time out but remind her to be gentle - possibly demonstrate a 'soft touch' to get someone's attention.
Hopefully they will listen and now that work is settling in for me, I can do my part at home to keep her calmer at school. The system kind of sucks sometimes though.
and last but not least...
...John: He's feeling better, just like at Christmas. He's firmly settled into his new digs and is up to most of his old tricks. Obsessing about food, pulling hair and pinching. They move him when he acts out to show that he's done something inappropriate and then redirect him by turning on his music or turning on the tv (depending on where he acted out.) His diet is still pureed but if it keeps him from inhaling food and getting gross stuff in his lungs, then I guess its the best thing for him. He went to the dentist for sedation (or is going soon) and we should be able to get a hip xray. He had surgery on them 20 years ago and we have no real idea how they are doing. There's a possible glitch in his medical record though because it says he has MRSA. I thought he did at one time and told a nurse that but then the doctor told me he did NOT have MRSA. So Monday mom has to play with the medical records people and try to figure it out. I'm not sure they can test for it unless he's actual sick and can give a mucous sample.
Life sounds so interesting, huh? Well in our own little world it is. Family time is precious though I spend a decent chunk of my time alone writing or playing on the internet. I spend a lot of time trying to figure out my sister but that's not really work - its just very fascinating. She continues to delight and amaze me. John still continues to try my patience. I love him very much; however he's fragile in mind and body and it takes far more patience to reach him. Mom is doing her best as well. Glad she has all the paperwork for money and legal signatures. Someday that will be all mine and that day can definitely wait!
Laterz.
...me: I'm really good. I tried a few Tae Kwan Do classes and settled on one that meets Tuesday/Wednesday/Thursday nights. I play Volleyball on Wednesdays but I can go on T/Th. I'm the lowest belt/newest person but I really like how TKD feels. I watch the others and the control they have over their body, the breathing, the flexibility and the whole attitude is amazing. Great, great energy. So I'm going to not worry about how bad I am or how long it takes me to learn something. I'm just going to keep going. The people there are really nice too and maybe I'll stumble onto a bit of a social life. Who knows? Work is kind of the same way - good people, but I'm much busier there so not sure on the social life implications.
...Angie: She's been having a bit of a rough time because I've been busy. We're very close and always have been. When I'm busy and drained, I tend to get a little grumpier at home and less focused on her. The big challenge is that Angie doesn't talk so she can't come up to me and say "listen, I know you're busy but PAY ATTENTION TO ME!" Instead, if I walk by her and she's upset with me, she'll smack my leg. This month that I've been working, getting home late, playing volleyball late or at TKD class, I just haven't been here for her. I do make a point of greeting her - a touch on the shoulder, a hug, making eye contact but its a change she has to adjust to. They have noticed a change in her at the Day Program as well. They suggested medication right away which really annoys me. She's been in this Day Program off/on for years. But with turnover, I know her caretakers/group leaders always change. They contacted my mom and I gave my suggestions to mom but she wanted me to talk to them myself since I express myself a little more eloquently. The Day Program contact refused to talk to me about Angie unless my mom was with me because I wasn't her guardian.
Excuse my language but What The Fuck? I pick my sister up, I drop her off, everyone knows who I am and when you see us together its VERY clear how important I am to Angie. Not to mention, my mom talks about my relationship with Angie all the time and her caseworkers and county nurse talk to me as well. This 'fresh out of school' brat needs to grow up and be professional. If she's really 'worried' then she just needs mom to sign a release. But I don't think that is it. Back in September when John was in the hospital again, Angie missed her bus and I had to pick her up. It was a stressful time for all of us and them making that kind of mistake was ill-timed. It wouldn't have been that big a deal for me except I was a) at the hospital with John and he can't really be left alone and b) a week before, the day program threw a hissy fit and called Angie's caseworker because my mom wouldn't leave work to pick Angie up at 1pm in the afternoon because they thought she had contagious ringworm on her head. For clarification, she gets on the bus to go home at 2:30pm. Their response to my mom was incredibly rude, insensitive and implied she was somehow a bad parent. So lets just say, a very agitated Hollie walked into the two people's office who called the caseworker and asked if she should call the caseworker on them? I definitely was not calm but they are supposed to be professionals and be able to deal with it. However, I'm pretty sure that's why they don't want to 'meet with me without my mom' because last time I yelled at them. Again, I say, suck it up and do what's best for Angie.
Anyway, since the latest communication happened by email, I replied to my mom and this woman who has a really odd last name with the clarification that if I can take my sister to the doctor and have her treated, then I'm pretty sure there's room in the law for me to tell her how to deal with Angie's hitting. (I said it nicer and I forwarded my reply to Angie's caseworker.) Like I said above, you need to be aware of Angie because she doesn't know how to politely ask for attention. If she's agitated by something (someone making loud noises or in her face) she's going to act out. While this is uncomfortable and inconvenient, its also a sign that she knows she has a right to protect herself and express herself. Redirecting is hard to do but it can be done verbally. The best action is to be proactive. Greet her in a way that she knows you notice her. Don't just say "hi angie", touch her lightly on the shoulder or wave to her and make good eye contact so she knows you see her. If she is acting agitated, give her either extra attention or give her time alone. If she hits, give her a time out but remind her to be gentle - possibly demonstrate a 'soft touch' to get someone's attention.
Hopefully they will listen and now that work is settling in for me, I can do my part at home to keep her calmer at school. The system kind of sucks sometimes though.
and last but not least...
...John: He's feeling better, just like at Christmas. He's firmly settled into his new digs and is up to most of his old tricks. Obsessing about food, pulling hair and pinching. They move him when he acts out to show that he's done something inappropriate and then redirect him by turning on his music or turning on the tv (depending on where he acted out.) His diet is still pureed but if it keeps him from inhaling food and getting gross stuff in his lungs, then I guess its the best thing for him. He went to the dentist for sedation (or is going soon) and we should be able to get a hip xray. He had surgery on them 20 years ago and we have no real idea how they are doing. There's a possible glitch in his medical record though because it says he has MRSA. I thought he did at one time and told a nurse that but then the doctor told me he did NOT have MRSA. So Monday mom has to play with the medical records people and try to figure it out. I'm not sure they can test for it unless he's actual sick and can give a mucous sample.
Life sounds so interesting, huh? Well in our own little world it is. Family time is precious though I spend a decent chunk of my time alone writing or playing on the internet. I spend a lot of time trying to figure out my sister but that's not really work - its just very fascinating. She continues to delight and amaze me. John still continues to try my patience. I love him very much; however he's fragile in mind and body and it takes far more patience to reach him. Mom is doing her best as well. Glad she has all the paperwork for money and legal signatures. Someday that will be all mine and that day can definitely wait!
Laterz.
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