Sunday, September 27, 2009

So fucking tired (excuse my language)

I'm sure that there's some message from the Divine in all of this. My faith is muddled but I've lived too long with my beautiful siblings to not have a belief in a higher power.

Facing mortality is hard. I've lost my father, an uncle and an aunt. I know my siblings won't live to an old age but lately I've had my brother's mortality thrown down in front of me like a gauntlet. Maybe raging against the inevitable. But i just do not believe that the only answer to my brother getting sick is aspiration and Down Syndrome.

I know a lot of people don't see the blessing my siblings are. Sometimes I don't see it. But when the moments come, when the tiniest action of your brother holding your hand or your sister brushing your hair, they come with a beauty that is brilliant.

They aren't broken. Nothing needs to be fixed. They just are who they are and helping them achieve their potential is as much their gift to us as it is our gift to them.

I know the day will come when they will get sick. Too sick to hope for them to get better totally. But I just don't think its now. And I don't have to give up quite so easily. I'll figure something out.

In the meantime, there is something I've been thinking about: http://larcheusa.org/

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